Help us advocate for the rights of patients with chronic and life-threatening illnesses. Work with us at community, state and federal levels in support of reforms and legislation aimed at advancing patient access to and affordability of healthcare.
"I think the biggest challenge I have faced is getting people to see me and not just a collection of diagnoses. I may need to take more time to do things or rest more often but there is nothing I can’t do. I think people read about a medical issue and assume you have everything they have read about. I’m not a text book, I’m a person."
"I chose to write about my story to hopefully debunk stigmas and teach individuals that their mental illness can be shaped into more of a super power than a detriment and that there is always hope."
"These days there’s such incredulity towards things you can’t see - viruses, deities, oxygen - we’ve got to insist on being seen and heard so the presence of invisible illnesses will be normalized and the default will be to believe what a patient reports."