Voices Across America Find Patient Stories Relevant to You Browse the map or filter by: Disease(s) Blood DiseaseBone / Muscle DiseaseCancerChronic PainCOVID-19Ear / Nose / Throat DiseaseEndocrine DiseaseEye DiseaseGastrointestinal DiseaseGenetic DiseaseHeart DiseaseImmune DiseaseKidney DiseaseLiver DiseaseLung DiseaseMental HealthMigraineNeurological DiseaseRare DiseaseReproductive DiseaseSkin DiseaseUrological Disease Issue(s) Abuse (Mental, Physical, Elder)Access to Expert ProvidersAddiction / Substance AbuseCopay AccumulatorsCopay IssuesDisabilityDiscrimination (nonmedical)Food InsecurityGaslightingGeographyInsuranceInsurance Coverage is InadequateInvisible IllnessMedical DiscriminationMedical RecordsMedicare / Medicaid IssuesNon-Medical SwitchingOral ParityOut of Pocket CostsPremium PaymentsRare / Underserved DiseaseRebate SharingSocial Security DisabilityStep TherapySuicide / Self-harmSurprise BillingTransparency in Health CareTransportationUnderserved Community Congressional District(s) CA13CA14CA45CT05FL06FL08FL18GA07ID01IL10IL14IN09LA04MA04MA06MA09MD04MD05MO05MO06NC03NC08NC09NC12NH 2NJ04NM03NY10NY14NY16NY27OH11OR01OR04PA01PA17TN02TX09TX19TX21TX32VA 1VA 9VA06VA07VA10VA11VT01WA04WA07WI02WI03WI04 Click on pins to view stories. ZOOM IN OR OUT TO CHANGE THE VIEW. Living with an Eating Disorder Migraine, Mental Health, and Gaslighting Medical Gaslighting had me doubting my disease Occipital Neuralgia pain – treatment hard to find Chronic pain and how it changed my life What decades of caregiving have taught me Arginase Deficiency: my child and grandchild Discrimination against me for my chronic pain Medicaid saved my life from cancer Engage patients in research – for John Going Miles for Migraine Ignored and dismissed in the ER I’m a “Dadvocate” with a rare disease Cluster headaches and CMS undermines treatment Psoriasis, Step Therapy, Community, Advocacy Oral Parity in multiple myeloma treatment Step Therapy wasted a year of my life Choosing a job based on health insurance Racial discrimination in my migraine care A legacy in wood work Multiple Myeloma helped refine my voice as an advocate COPD and how it led me to Advocacy Carrying the cost of MoyaMoya Disease Epidermolysis Bullosa and why I advocate In pain, but pain doctors won’t help Depression: Setting an example for my kids MS – I do this for my dad Ten Minutes for MS Cancer and a Love of Star Wars Child born with rare disease now old enough to give back Fighting to be by her father’s side during the pandemic Joy Helping Other Cope with Lupus Their disbelief may have caused her cancer Bullied because of her rare disease Disabled and Fighting with Medicare and Medicaid Forced off a working therapy Intersecting Art and Advocacy Finding Inspiration in 17+ Years of Neuralgia Protecting the Privacy of Patients My greatest curse, my greatest blessing Occipital Neuralgia and my dog Occipital Neuralgia – filling a void empower patients with health literacy From Trauma to Triumph with Diabetes The system isn’t built for rare diseases ALS and a better life for my son Kimberly, Reynaud’s and suprise billing My Diagnosis – so close, so far away Step Therapy Left Me With Chronic Pain It’s…frustrating. I’ve now got to pay large bills myself 6 years fighting for a drug approval for duchenne MD Knowing that there is someone battling the system for me Helping make a change for other diabetics Advocate for those suffering with PMDD Jim, and growing up with depression I Fight for My Dad Latest Updates New patient story by Karen published on May 10, 2021. New patient story by CarmenRose published on May 5, 2021. New patient story by Angela published on May 4, 2021. Get the most from every Story Find A Compelling Patient Story Share it on social media. Find A Story Share Your Story On Our Network Share your insights, challenges and what keeps you going. Share Your Story
