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Voices Across America

Arginase Deficiency: my child and grandchild

Christine

State: Washington
Congressional District: WA07

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Diseases

Genetic Disease

Issues and Challenges

Christine has encountered: Access to Expert Providers, Copay Issues

My Story

While I am just a grandma with just one daughter and just one granddaughter, my story comes from a position of support rather than my own story of dealing with a disease. As a parent and grandparent I offer as much help as I can, but it still not the same as dealing directly 24/7 with a patient or as a patient. My heart often hurts when I see the struggles that my daughter and her family deal with every day.

My Motivation and Inspiration

My motivation is my daughter and granddaughter.

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