Arginase Deficiency: my child and grandchild
Issues and Challenges
Christine has encountered: Access to Expert Providers, Copay Issues
While I am just a grandma with just one daughter and just one granddaughter, my story comes from a position of support rather than my own story of dealing with a disease. As a parent and grandparent I offer as much help as I can, but it still not the same as dealing directly 24/7 with a patient or as a patient. My heart often hurts when I see the struggles that my daughter and her family deal with every day.
My Motivation and Inspiration
My motivation is my daughter and granddaughter.