Voices Across America

Desperate for Alternative Medicine Options

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GoofyNanna

State: Colorado
Congressional District: CO03

Diseases

Bone / Muscle Disease, Chronic Pain, Gastrointestinal Disease, Neurological Disease, Rare Disease, Urological Disease

Issues and Challenges

GoofyNanna has encountered: Access to Expert Providers, Access to Medicine, Medicare / Medicaid Issues, Rare / Underserved Disease, Surprise Billing, Disability, Invisible Illness, Medical Devices, Medical Discrimination, Social Security Disability

My Story

My Medical Doctors truly don't understand the overwhelming effects of all the health issues/conditions that I have. They all interact with each other and require many medications, all just to barely survive every day, painfully.

I have Inflammatory, Neurological, Nerve, Gastro, Spinal cord, brain (past stroke), now long-term-Covid added to it. I've been on Entyvio Infusions (chemo drug) that have side effects along with all the other medications for the above ailments. All I want/need now is someone to try something different like Acupuncture, Acupressure, massage therapy, TENS, heated Ultrasound. Something other than what we've been doing for years since not much relief.

My Motivation and Inspiration

What keeps me going, without losing my mind> Realizing that there's always worse than me! I try to keep busy with things I love to do And not "Giving Up" OR not "Giving In" to drugs, alcohol, etc... which would just make me worse! I turn to Bible study, reading, crafts, cooking, baking, being with my Family, doing surveys to help others, dedicating whatever I can in TIME for granddaughter's softball team, being with my grandson, etc... I don't understand how Disability has refused me twice in the past(years ago) when I see other people with less problems than myself? who are on disability.

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