My Diagnosis – so close, so far away
State: New York
Congressional District: NY14
Chronic Pain, Genetic Disease
Issues and Challenges
Lauren has encountered: Copay Issues
I have struggled with chronic pain since high school. Eventually, as a young adult, I was diagnosed with Hypermobility Syndrome, but the issues never resolved even with treatment. As of now, I am nearing my 30s, and I'm attempting to receive an evaluation for Ehlers-Danlos Syndrome, but my insurance does not cover a referral to any nearby geneticists. Out-of-pocket costs are a hurdle, preventing me from receiving the care I need.
My Motivation and Inspiration
I am inspired by the stories of others who have managed to overcome the challenges of the healthcare industry to receive an EDS diagnosis. Hopefully, one day, I too can see a geneticist.